World Alzheimer's month: Sussex Dementia Career Journal shows people that you are not alone

Health | Wednesday, September 21, 2022 at 7:06 AM

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Geraldine Durrant of East Grinstead, is a former journalist and author, her husband Patrick, 78, received a dementia diagnosis of Lewy Bodys in June 2021 Geraldine begins to trace her emotions and turmoil with a full -time caregiver in a newspaper she named Midsummer Madness. Register for our Daily Sussexworld TODAY Newsletter Register thank you for registering! Sorry, there seem to be problems. Please try again later. Submission... Register for our Daily Sussexworld TODAY Newsletter Register thank you for registering! Sorry, there seem to be problems. Please try again later. Submission... She said: "Nothing is more awful is wasted with a writer. I started the newspaper when diagnosed for the first time because it helps to remove things from my chest. After reading stories of online careers, I realized that others could recognize their difficulties by ourselves and feel less alone if I shared it. So I did it, by changing our names in James and Georgina to preserve my husband's privacy at first, which remained. »» Patrick and Geraldine She admits that the book is not entirely misfortune and sadness because it also discusses the light things that occur in their lives, adding that the paper putting it helped it to manage sorrow. "Her diagnosis has caused a huge undulation in our pond, and we have felt alone since the start of this trip," she said. "I was surprised that after Patrick's diagnosis, we were not called by the general practitioner. It took a long time to navigate the system, so if the blog can help direct people in the right direction during their difficult times, I will win this little victory. “Patrick recently went to hospital for five weeks with an infection. They promised to send it to a local care house for the detoxification treatment while we obtain a care package in place. But they would not refer me to me without a care package, and I could not repair a care package because there were no caregivers available. Patrick and Geraldine on their wedding day “I had the impression that my husband would have been at the hospital indefinitely, so I used a large amount of our savings to pay privately and bring it into a local dementia care unit. What is obvious is that there is very little official support. “It would have been cheaper to send my husband to the Caribbean for a fifteen day holidays than to have a respite at home. It would be something that takes care of a person with dementia if you were in good shape and in their twenties, but I am an old lady with some replacement joints. "" Alzheimer's calls for each primary care network to use government funding for primary care roles in order to provide at least one dementia support worker in their region. It is community specialists who provide the missing link between people affected by dementia and support after a diagnosis. A network of primary care is a group of local communities, mental health, social care, pharmacy, hospital and voluntary services working with practices of general practitioners to provide integrated health and social care to people close to at their home. Jolian Ardolino, regional director of the Alzheimer's company for Sussex, said: "Diagnostic post-demo support is unequal, inadequate and incoherent, leaving families without the necessary care they need to go through some of the most difficult periods and the more frightening in their lives. People need good support from the moment of diagnosis. "Having a worker dedicated to dementia in all areas would fill the shortcomings we see in primary care, will give people the only point of contact to help them navigate the health and social care system and social care and to facilitate pressure on health services. Dementia support workers provide a crucial link between the 26,520 people with dementia in Sussex and post-diagnostic support. "" Dementia is a complex condition and support needs are often more specialized than those provided by primary care currently. This includes help in daily tasks, fall prevention, going to community groups and speaking therapy to improve well-being and prevent mental health crises. Alzheimer's company says this type of support could be organized by close relations with dementia support workers. Dementia was the main cause of death in England in July of this year, representing 11% of all deaths. It was also the 13 consecutive month as the largest killer in the country. During the month of the Alzheimer's world, researchers urge people from the whole region to register for dementia research, a national register designed to give people access to a potentially changing research. The register is intended for anyone over 18, with or without dementia diagnosis can register to participate in dementia research. A study by researchers from Brighton and the Sussex Medicine School which takes place in the region of Kent, Surrey and Sussex could be decisive (determinants of quality of life, care and costs, and the consequences of inequalities in people with dementia and their caregivers). The study examines the care that people with dementia receive after their diagnosis to see how their quality of life is affected, then examine what can be improved. The study is supported by the National Institute for Health and Care Research (NIHR) Clinical Research Network Kent, Surrey and Sussex. Dr. Ben Hicks, researcher and program manager to determine, said: "We are looking for people who have been diagnosed with dementia and their caregivers to participate in the study. One way that people can show their interest in participating is to register to join dementia research. »» For more information, visit the dementia research website. For support and advice on dementia, call Alzheimer's company on 0333 150 3456 or visit

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